Friends,
I have had the amazing pleasure of being able to connect with some amazing people who also struggle with Mast Cell Activation Disorder. Having them in my life has been a huge blessing. They understand what I go through everyday... they get it. One of these amazing humans is Cheyanne. I stumbled across her youtube channel when I was first diagnosed and she made living with this seem doable. And then I was able to connect with her through Facebook. She has been such a big help in navigating this illness. Another one of the amazing humans I've been able to connect with is Ellie and her mom. Ellie is still just a kid and has already dealt with so much. This awful disease has robbed them of being able to eat. Their bodies rejected all forms of nutrition. Both of them now get all of their much needed nutrition through feeding tubes. The formula they were using was working, they were getting the essential nutrition that they needed and they were getting that without their bodies rejecting it. Unfortunately; the company that manufactures their formula has changed something. The company refuses to admit something has changed. But both of them had extreme reactions to the new formula. They are struggling right now. And they need our help.
Cheyanne has set up a petition to change back to the old formula. They are not the only ones who are now suffering because of this change. It may not seem like it but signing this petition will help save lives. Please take 30 seconds to click the link below and sign the petition. You will not receive any spam emails. Every time someone signs the petition the company gets an email. I have also linked a video to Cheyanne's youtube video about the situation if you'd like to learn more.
Click To Sign The Petition
Cheyanne's Nutrition Video
With Love,
Elizabeth <3
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