Sunday, October 1, 2017

Dysautonomia Awareness Month

I can't believe it's already October. October is dysautonomia awareness month! Dysautonomia is the umbrella that postural orthostatic tachycardia syndrome falls under. POTS isn't as rare as everyone thinks it is. It is likely that millions of people suffer from it. However; not many doctors are educated or know about dysautonomia so patients are often misdiagnosed or dismissed for being crazy or making up their symptoms.

 I will never be able to thank the doctor that investigated my weird tachycardia enough. He realized that whenever he would come in the room and I remained laying down I was fine. But if I sat up when he would come in my heart rate would jump from 90 beats per minute to nearly 180 beats per minute. He then called in a cardiology consult and my POTS diagnosis was formed. We did a little more testing and it was confirmed. The first official answer to my crazy medical puzzle.

He helped me figure out a diet plan and medication that would go on to get my POTS under control. I still struggle with symptoms but not anywhere near the symptoms I was having before being diagnosed. I haven't been found unconscious on the street in months. Every day I'm taking another step in the right direction.
"In him was life, and that life was the light of the world." -John 1:4

With Love,
Elizabeth <3

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